The fight against cancer is an omnipresent struggle. There are marches, product branding and celebrities who have banded together to “find the cure.” But what about other serious diseases that are left in the dark? Singer/Songwriter Sara Mann has teamed up with Billy Ray Cyrus on a mission to raise funds and awareness for Polycystic Kidney Disease (PKD). Sara’s story is not an easy one for her to tell.
After losing a child to ARPKD (Autosomal Recessive Polycystic Kidney Disease), and being diagnosed at the time she was ready to give birth to twins, she decided she had to share her story, and do what she could to raise awareness about kidney disease. “It has been difficult for me to sing since we lost Myles. I would try and sing lullabies to Ruby and tears would just start streaming down my face. Even looking at her alone in her crib brought back memories of her twin,” Sara said back in 2012 when she first started recording the album.
PKD is one of the most common life-threatening genetic diseases. The disease affects more than 600,000 Americans and 12.5 million newborns, children and adults around the world. It is more prevalent that Down syndrome, cystic fibrosis, muscular dystrophy, hemophilia, and sickle cell anemia combined.
There is no treatment or cure for PKD, and the heartbreaking yet emotionally informative songs on Sara’s new album, “Lullabies,” are some of the first steps taken by an artist to raise awareness for the little known yet ubiquitous ailment. Billy Ray Cyrus joins Sara in a duet of “Tears in Heaven,” originally written by Eric Clapton on the album. “Lullabies” was launched on March 19th, and is available on iTunes and CDBaby. All proceeds from album sales will be donated to the PKD Foundation.
Sara leaves listeners with a note on her website:
“I could hardly hum a tune after our son’s passing. I needed to heal physically and emotionally. I partnered with the PKD foundation to make a lullaby record for parents and children. Something they could give to others like myself, a family living with the disease, or for anyone who is mourning any kind of loss. There is a saying that music heals the heart and soothes the soul. I hope you find strength through this music like I did.”
To buy the album and support the PKD Foundation, visit iTunes: https://itunes.apple.com/us/album/lullabies/id617170971
To learn more about the PKD Foundation, visit their website: http://www.pkdcure.org/
RYOT NOTE: This is a great album for a great cause that certainly deserves attention. We love the PKD Foundation, which is committed to discovering treatments and a cure for Polycystic Kidney Disease. You can support the PKD Foundation by buying the album on iTunes, or by sharing this story.